Did You Stock Up For The Storm?

Moby’s “When It’s Cold I’d Like to Die” (sung by Mimi Goese) is currently playing in my ear. Although I’m conflicted about Stranger Things, their music director made fantastic choices, some that I had completely forgotten. The “official” Stranger Things playlist is a walk through my teens and early 20s. I hear a song and I’m suddenly in Florida, laughing in the heat, the sky that intense blue of a summer afternoon. 

I’m delighted to report that my article, “Are We Not Evil?,” published in The Third Annual, has been called “…that oddball postscript…typical of the ‘don’t-give-a-fuck’ approach [Frans de Waard] habitually adopts.” The reviewer, Alan Rider, from Outside Left Literature, goes on to say that the Annual “…is superbly executed….” You can read the full review here. If you still haven’t bought a copy of the Annual, text me or leave me a note here on my blog. It’s 250+ pages of underground, out-of-the-mainstream fun. Be warned, though, I only have three or four copies left.  

In a coffee shop that is nearly empty, two children are now sitting so close to me that they can, and have, bumped into me multiple times, because, as we all know, children have the spatial awareness of your average bouncy ball. I love children. And thus, I am pretending that I’m delighted they are sitting nearly on top of me. I refuse to make eye contact.

Save me. Mom and the little one have gone to the restroom. The older child has taken the opportunity to rearrange their seating thus that I cannot leave mine. I am, literally, wedged into the corner of the store by an 8 year old wielding a chair. 

After an hour or more of older child’s fidgeting, pencil dropping (a coordinated activity for annoying teachers when I was in grade school that apparently has not gone out of fashion), getting up for a cup of water, getting up for napkins to wipe up water, getting up to “just look” in the snack case, getting up to change leg positions, leaning as far over the back of the chair as possible in hopes of hitting me with a very long pony tail…I am finding their presence distracting. I’ve read the same paragraph at least 30 times. My computer has gone to sleep as I’ve repeatedly tapped SOS in morse code on the window pane. 

On the silver lining side, I’m getting a math refresher. We’ve been focused on the fives times table for nearly 15 minutes, a little too long, in my opinion. It’s time to move onto sixes. And sevens. Yes, that was a purposeful pop culture reference. Thank you very much. 

In other news, the boss (my doctor) asked me to lose 20 pounds but told me it would be difficult because I’m older than dirt postmenopausal. Challenge accepted. I’m down six pounds since our appointment. Ha, body, take that! It’s definitely not easy the way it used to be. I remember the “old” days, when I could eat chips and french onion dip for dinner and bounce out of bed the next day with the energy of someone who never lets unhealthy foods pass their lips. 

Tuesday was the weekly shopping trip for my cognitively declining friend. We used to try new breakfast places regularly. Now, our choice is based on “what’s most convenient.” I always say, “well, that would certainly be the focus if we were walking or taking a horse and wagon…BUT since we’re driving, we can go wherever we want.” They always laugh at that but still fuss about distance. So, we ate breakfast two minutes from Costco, but not inside Costco, so still a win. 

Ordering food is a challenge. They struggle to remember what they want and sometimes they order the wrong food. One time, for example, they ordered a reuben and fries; but what they wanted was a reuben omelet and home fries. How do they know they’ve gotten the “wrong” food? When they’re happy with their meal, it’s “the best food they’ve had in months,” every time. When they aren’t happy–almost always because they mis-ordered–they complain that it’s “hard to eat” or “doesn’t taste the way they’d expected.” 

I’ve learned! Now, before our server arrives, I ask what they think they’ll order. We’ve even gone over the menu to discuss whether any of the items–almost always omelets–are good. They’ve had all of the options so I can even steer them toward their favorites if they can’t choose. If they can’t remember their order by the time the server arrives, I jump in and say “You mentioned ‘X.’ Did you still want that?” 

My favorite diner, Pamela’s, eases the ordering confusion by always offering to make us the “usual.” Let me tell you; my friend LOVES that they have reached Cheers status. Even though they don’t know what their “usual” is, they’re always delighted to know that they have a usual and that Pamela’s kitchen knows what it is. And yes, it’s the same order every single visit: a well-done Greek omelet, crispy home fries, wheat toast with grape jelly, and hot tea with lemon. 

Their grocery list on Tuesday was written on a piece of paper slightly larger than a postage stamp. I’m not exaggerating, unfortunately. They couldn’t read some of the items on the list even with my handwriting decoding skills. It reminded me painfully of my MIL’s notes as she declined and my own mom’s handwriting as MS stole her hand function. 

Today, we went out again to “prepare” for the bad weather like we’re heading out on the Oregon Trail. First, we went to breakfast in Pittsburgh’s strip district. The food was good but they couldn’t find the honey for their tea–they couldn’t remember what it looked like. When I pointed out the honey packets, they put it on their home fries instead of in their tea. I’ve never had honey potatoes but they were pretty happy, which is really all that matters. 

Once we got to a very busy Costco, they insisted on shopping alone, as they often do. Usually, I check in to make sure all is well; but it was so busy today that I had a time keeping track, ultimately losing them entirely. Every time that happens, I wonder if I’m about to learn Costco’s protocol for when someone goes missing in their store. 

Be safe out there as the storm rages and don’t forget to check on neighbors and pets. 

Much love.

Did You Stock Up For The Storm?

It’s About The Oil

Happy New Year, I guess. I’m not going to ponder here the implications of starting wars in other countries to avoid discussing pedophilia in the US. It’s certainly, nonetheless, worth highlighting that military action is inherently dangerous. Everyone, regardless of political party, should be horrified by the suggestion that our troops would be placed in harm’s way for any reason without significant oversight. If it’s a valid action, there’s no reason to hide it from the members of Congress whose role it is to protect the children, siblings, parents who serve in our names.  

Moving on as I, literally, in that first paragraph, promised that I would.

Because the cognitively declining person in my community can’t drive anymore, I often shuttle them to the grocery store. Today, we went to Costco where they insist on having their own cart, which they sometimes lose and we don’t always find. We usually shop separately because they prefer to go their own way. I suspect it’s an independence thing, which is good, though their grocery selections are often impulsive and not particularly healthy. 

Today, I stopped them from buying two bottles of gummy vitamins because they already take a vitamin supplement ordered by their doctor. Next, I discouraged the purchase of three pounds of very expensive angus beef. My persuasion was not successful. The angus beef has entered their refrigerator, hopefully to be packed into smaller amounts and quickly frozen. (I’ll check in a couple days.) I did distract them from purchasing a lifetime supply of Oreos which was both sad, because who doesn’t love a sandwich cookies, and also necessary, because a single older individual should absolutely not bring three pounds of Oreos into their house. 

I always try to make sure I’m with them at checkout because they find that process challenging, often unable to find their membership or credit card in their admittedly overstuffed wallet. The staff is patient but the process is still overwhelming. We got through it today with minimal bumps and pushed our carts to the exit. This is where things became hilarious. 

Our carts are side-by-side because they want to be able to see me. They worry if I’m behind them. I worry if I’m ahead of them because sometimes they get distracted and stop. I’ve lost them before simply by turning my back for a moment. One time, they bought a second lunch at the Costco cafe, having forgotten that we ate before shopping. They were mid-pizza-slice when I found them. Too late, of course. Another time, they completely left the building and sat in the parking lot–on one of the diamond-shaped barriers. I was in SUCH A PANIC, looking for them. In hindsight, it’s a memory I can laugh about but at the time I was sick to my stomach wondering if they’d wandered away or gotten into someone else’s car (a thing they’ve tried to do). 

Anyway, as I was saying, our carts are side-by-side as we walk through the sliding doors, unfortunately blocking a couple trying to enter. I apologize and make a joke. The man says, “You’re funny. You should be on stage at the Comedy Club. It’s right over there.” That makes me snort laugh. He and his wife laugh too and we all continue on our way. The person I’m with says, “Oh, that was so nice. What a compliment.” I look at them and consider whether to explain that the comment was NOT a compliment. It was what the kids in the 20 teens would call a “sick burn.” And it was really well done. 

I received copies of the European periodical that published my article. If you want one, hit me up. They’re €8.50/$10. I wish I could give them out for free but I had to pay to ship them from Europe, which, with tariffs, cost me $200. I’m trying to make a living here, lol. 

It seems I owe my pancreas an apology. Tests suggest that it is working as expected which, while good news, does lead to more questions. In addition, although I was supposed to transition to twice yearly scans from quarterly, my oncologist has concerns regarding all the weird new blips and blobs in my organs that showed up in the December scans. That, combined with the whole “can’t digest food” thing, has resulted in continuing with quarterly scans. Whatever. I woke up this morning still alive and that’s pretty awesome.

So, again, I say: Happy New Year. Protect your peace; there are more rough days ahead. 

Much love.

It’s About The Oil

Forgo the Filter: Say the Mean Part Aloud

The weeks are busy, temperatures falling like the leaves. Gusty winds cause the trees to litter bright yellow and deep brown detritus on the sidewalk. As I’m watching, a dark red leaf is whipped into the street by the wind and smacks someone in the face. They start visibly and rub their cheek. Strange that a leaf can hurt like a word.

I’ve been helping a lot, recently, with a person who will remain anonymous (privacy, yo). They are losing life skills and sometimes boundaries. We went to breakfast recently and they asked me whether a specific individual was circumcised. That’s not even their most recent embarrassing question. I handled it like a champ, but not all of the people in hearing range were as comfortable. It was, you see, quite loudly asked. 

Things they said (in a NOT-a-whisper whisper) during our breakfast: Is that person a boy or a girl? There should be better portion control (as a very large person walks by). This bill is wrong (it wasn’t). I don’t like eggs (they ordered eggs). It makes me laugh but also it can be sooo awkward. A few weeks ago, I took them to the farmers market and they said, “I don’t like honey” to the beekeeper. It’s like social media. I’m caretaking the person who, if they could understand social media, would reply to your blueberry pie post with, “I don’t like pie.” Words that could, with a tiny bit of effort, reside only in their head fall out of their mouth like items falling out of an open backpack hanging off a jogger’s shoulders. 

Unfortunately for me, our relationship could be characterized–on my part–as obligatory. We aren’t friends and, prior to their cognitive decline, we weren’t even particularly friendly. They rely on me now. I help willingly, even though, some days, this person says things so smack-worthy that I have to take a deep breath before I reply. The problem(?) is that, although there is undoubtedly a world in which I could just walk away, I don’t live in it. My kids ask me sometimes why I continue to help. There are so many reasons but possibly the most important is that I won’t treat this person the way they treat everyone. I will, I am determined to, act toward this person the way I think I should act. I won’t be like them. I will look back on my own behavior knowing that I did the best I could, not the least that I was able, though, occasionally, I have told them that if they don’t knock it off they will be walking home.

In a strange coincidence, two people in my life are declining cognitively. Unkindly, the one for whom I would do anything lives two hours away. Because she has sundowner’s, it is kindest to visit before lunch. After lunch, as the day lengthens into evening, her fear and anxiety overcome her conditioning; she lashes out physically and verbally. So, yes, planning is involved in every visit. I leave the house early, grab an iced tea from the coffee shop, and get on the road with a downloaded audiobook before 8AM. When I can see Lake Erie gleaming deep gray on the horizon, I know I’m almost there. If traffic favored me, I’ll have time to get breakfast, most recently at The Original Breakfast Stop. No matter what, though, I have to go to Romolo’s and get not-my-Aunt G her peppermint patties. Her favorite treat used to be chocolate chip cookies but something she can’t explain changed her preference. 

There is a particular grief to watching the end of days for someone you’ve known your whole life. My not-my-Aunt Ginny is a core person for me. My earliest memories include her. In my youth, months sometimes passed when I didn’t see her, but she’s always been there, a weight-bearing pillar of my existence. We’re not related by blood but she’s as close as any who are. She calls me one of her two girls. She can’t reliably remember my name, but she remembers that. 

Often, on my visits, I’ll push her wheelchair around the facility so she can wave to everyone. In the past, she told me stories that conflated the residents with former boyfriends, neighbors, and her six siblings. The stories were good, sometimes racy, and probably partially true, though it’s impossible to know for certain. Everyone I could ask is gone. None of that matters, though. The connection is the important part. 

We’ve reached that place in dementia, though, where we spend most of our visits just sitting next to each other, holding hands. She struggles to find words now and to maintain a thought long enough to say a full sentence. Often, she’ll start to say something, search for a word from the garbled data in her brain, and trail off without realizing it. One of these days she’ll stop entirely. Hand-holding will be all that’s left, then, and it will still be all that matters. 

Much love.

Forgo the Filter: Say the Mean Part Aloud