Repetition and/of Grief

The repetition is reassuring. “Breathe in. Breathe out. Breathe in and hold your breath.” After the first experience of having my liver scanned–I had confessed my nerves to the technician–he asked me how I felt. I told him the first breath is the hardest. You don’t know how long you’ll be holding it. Lying in a shallow cylinder filled with very loud noise and muffled, tinny music, seconds feel like minutes. Once the rhythm of the process is clear, it’s not difficult. The repetition feels like a test that you’re smashing. Yes! I held my breath. I kept still as a statue. Now, I can breathe again (for a moment, before the “breathe in” recording recycles). 

Keeping still is essential or they have to stop and restart the scan. One time, I cried but stayed completely still. The tears were silent as they rolled down the sides of my face into my ears and onto my neck. The technician asked if I was okay, if I wanted to stop. I said, “No. I’m okay.” And we kept at it. He didn’t say anything about it at the end, didn’t comment as I carefully wiped the tear stains with the edge of my hospital gown. We all have to wear two, one as a gown and one as a jacket, with a pair of ugly, ill-fitting, hospital pants. Today, they offered me a heated blanket, which I took happily. They blow cold air into that narrow tube. It’s hard to stay still when you start to shiver. 

The contrast burns just a little. It’s cold, running through the tube on my arm and wrapped around my thumb (to keep the tube from catching in the machinery and getting yanked out of my arm). This is my favorite part, not the mildly uncomfortable sensation but the chilly, stinging knowledge that we’re five minutes from the end of the scan. I don’t hate that narrow tube but I do hate what it represents. Now, the wait begins. This is the worst part, the worry, the anticipation, the sour-tasting hope. What will the scans reveal? 

I arrived home oddly tired, from the stress, and determined, as usual, not to think about the wait, not to watch for the notification that I have test results in my medical chart. Two of the contractors repairing the leak in my bathroom came into the kitchen as I emptied the dishwasher. They use the microwave every day to warm up lunch–a homemade taco bowl for one, meatballs in red sauce for the other. We always spend a few moments talking: one has a baby due next month and momma-to-be is at that stage of pregnancy where nothing is comfortable. The other is a foodie. We compared experiences eating Indian food and he told me about a Nigerian place he’s going to try soon. It’s far south of me, closer to Washington, PA so I probably won’t get there.  

They’re silent about the scans, of course. But one of the other contractors fusses, offering to move his vehicle so I can park closer to the house. He’s mournful, pitying, which always feels incredibly uncomfortable. They all know about the cancer because I joked with the GC one day that I’m going to have a nice tub before I die. I’m not dying but awareness matters. The life insurance company won’t insure me until I hit the five year mark–they know the score and so do I.

One of my nieces and I are planning a hiking trip to the Isle of Man, 100 miles around the whole of the island. The hike is called the Raad ny Foillan–pronounced rad na foil yan–the Way of the Gull. I’m hoping we’ll convince the family to go with us, at least for part of the trip. I think my dad would appreciate the idea of all of us visiting the homeland together, though I’ll acknowledge that I rarely act in ways that would please my father. Still, this is a trip I’d love to make. Something about it calls, like I’m a salmon rushing to get upstream. 

Construction work is nearly complete on my unexpected bathroom renovation. I was planning only to repair the shower. Then, when the GC pointed out the obvious, that I’d have to replace the shower tile, I realized that I’d also have to do something about the matching tile with which the previous owner lined the entire bathroom, including the built-in jet tub that I hate with the fire of a thousand suns. I’m not re-tiling the outside of that bathtub, I’m replacing it. You see what happened, right? From there, it was only a short jump to replacing the useless jack-and-jill sinks with a smaller vanity and STORAGE. This is how one starts with a minor repair and ends up with a renovation. 

I’ll admit to a moment or two of panic as the workers carried bag after bag of my former bathroom out of the house. The only reno I’ve ever done is DIY. This has been an adventure in learning new strategies and new coping mechanisms. They have taught me much about efficiency and tidiness while working. And laughter. There’s been something delightful about listening to the plumbers giggle together. Not so much the noises four men made as they carried my new freestanding, and very heavy, tub up two flights of stairs…those sounds feature in my nightmares. 

Early in the project, one of the young men, not quite an apprentice but definitely not a grizzled icon of construction work, slipped and fell through the newly floor-less bathroom, leaving a foot-shaped hole in the second floor bedroom ceiling. He wasn’t hurt. That’s the most important thing. He was CHAGRINED and has very gracefully endured my teasing ever since. He’s also done a great job on the repair, including repainting the entire ceiling because the sheen on the new gallon of paint didn’t match the original (even though we had the empty can to take to Sherwin Williams). File that under unsolved mysteries! 

It’s theoretically possible that I’ll be showering in my new bathroom this weekend. I sure hope I don’t hate the experience because I’m never doing it again. Maybe to the other bathrooms? If I do any more renovations, the kitchen is probably next. Some maniac former owner decided that the cupboards should be painted with floor stain, probably because they knew they were leaving a mess for a future owner. The floor stain is a misery–a curse on their gardens for the struggle they left with us. They also added cheap storage at the ceiling level that I was initially excited about. All the love to that naive younger version of myself, the one who thought she wouldn’t hate having to get out the step ladder every single time she needs something from those cupboards, which has proven to be way more frequently than the younger version of myself anticipated. 

After nearly a month with this group of contractors, I have affection for some, tolerance for one, and appreciation for another. I’ve gotten to know the individual sounds of their voices, their footsteps. I have inside jokes with the GC and talk to the apprentice like he’s my son (he doesn’t seem to mind having been “adopted” by me). They’ll leave at the end of the day today and it’s possible I’ll never see any of them again. I won’t hear about the birth of the baby next month, won’t know about the foodie’s latest obsession, won’t get the update of life after the move into a new apartment in two weeks, won’t hear the incredibly loud belching (which I’m not sorry to leave behind). Life is filled with these little bereavements. Ships passing in the night, the cliche calls it. 

But it’s more than that. Just as I’ve made room in my life for them, they too have created a world around this job. I suspect they do it with every project, moving their things in: a hoodie draped over the banister, house shoes by the front door for bad weather days, a ladder left in the second floor room after the ceiling repair. I found a construction pencil by the basement deep sink and a roll of blue tape at the top of the stairs. They’re incredibly tidy but also comfortable in the space, which feels very warm. I love to hear their feet pounding down the steps as they run outside to get something from the truck and their voices as they call to each other–a joke, a request, a question. 

The house will be quiet when they’re gone. Even the dogs will stop their barking.

Much love.

Repetition and/of Grief

Have You Visited Your PCP Lately?

Walking to the coffee shop today, I got stopped by one of those sidewalk sales/charity teams. (I have no idea what they were pitching.) They greeted me and of course I greeted them, super friendly, no defense in place. However, when they said, “Stop and check us out,” I said, with a huge smile, “I can’t. I have a DATE.” I’m still laughing. I have no idea where that came from. I don’t have a date (unless it’s a date with my manuscript?). Even better, the young woman said, “Awww.” It’s making me laugh again as I sit here at my little coffee shop table. Was she awwing about my excitement or was it because this little old lady is getting some action? (The last one is absolutely the funniest but both thoughts are making me laugh.) Where did that lie even come from? I haven’t been on a date since I was 22. SMH I may go to hell for that lie but at least I’ll be laughing.

Haley and I were at a thrift store a few weeks ago. She prefers to thrift her clothes and I love to watch how she chooses items. We had to park rather far from the store – it was a busy Saturday for thrifting – and as we were walking toward the entrance, I saw a man pushing a cart toward his car. There’s no cart return option at this thrift store. So, obviously, I offered to return the cart for him. What surprised me was his reaction: He was so pleased, so shocked, as though I’d offered him money or bought him lunch. He was unprepared for someone to do him a kindness. 

I’ve been thinking about that a lot since it happened. Community is our first line of resistance and kindness is our best beginning. It costs literally nothing to be kind to others. We’re all struggling and if you’ve read any of Project 2025, you know that we’re going to be struggling a lot more. Forming community and protecting the most vulnerable in that space are essential actions as we face down the egregious destruction and evil coming at us.

Last week, I encountered an elderly woman as I was heading into Costco. She was filling her car and stopped me, asking if I would be willing to wait a moment and take her cart. Even if I hadn’t been headed into the store, obviously, the answer was yes. I checked the contents and offered to put the heavier items in the car for her. She said, “No, no. Those are heavy. I can’t ask you to do that.” Here’s me thinking, ‘Ma’am, you’re, at minimum, 20 years older than me. I think I can help here’. When I insisted, she fussed a little and said, “Oh, thank you. Today’s the first day I’m walking without my cane.” And yet, she didn’t want to impose by having me lift a case of water for her. Honestly, I wanted to give her a hug for even asking me to take her cart back to the store.

Have I ever mentioned how much I like estate sales? Haley and I went to a crafter’s estate sale on a recent Saturday and came home with dozens of skeins of hand-dyed yarn – primarily wools and silks, the most beautiful, rich colors. Imagine my surprise when my 18-year-old shows me that he’s already snagged three skeins of a deep red wool to crochet himself a blanket. Being a much faster crocheter than I am, he quickly needed to go to our local yarn store to find some complementary yarns. He’s added a deep purple to the blanket and it is gorgeous. 

I just had my annual preventive care doctor appointment. My blood pressure is great. My blood work (which I get every three months) is perfect. I have appointments for my annual mammo and my every three-to-five year pap test. Last year’s colonoscopy was good enough that I won’t need another for 10 years. I even got my pneumonia vaccine (yay, asthma). We also talked a bit about how very lucky I am to be alive. Probably not a conversation most patients have, am I right? I think they – the doctors – want to be reassuring when they bring it up. Apparently, it’s a bit of a thing in the office – the nurses told the residents about the ‘miracle’. If the story helps someone else, it doesn’t bother me to talk about it; I still feel, frequently, that stab of gratitude for the technician who spotted an anomaly on a random CT. 

Maybe I talk about it too often but I think it’s worth remembering the gift of a ‘second chance’, if you will. What does that look like? Should I climb Kilimanjaro? Run a marathon? Learn a new language? Travel the globe? There are, absolutely, a few trips on my bucket list – the Isle of Man which was my great grandfather’s birth place, a few more National Parks, Padre Island National Seashore again. More important, though, is my hope to spend more time within my little community. After all, it’s not where you go but who you are with on your journey. 

Much love.

Have You Visited Your PCP Lately?

Take Time to Smell … Paint Stripper?

The nightmare was bad, the kind that makes you choose not to sleep for the remainder of the night. It was 4ish when I awoke, though, so I lay in bed, listening to the sounds of the early morning: two foxes talking as they headed toward the park, early birds calling to each other – more likely warning others off but as a non-speaker of bird, I couldn’t say for sure. 

There was a gentle movement at my back. One of my doxies has been sleeping with me; and curled tightly against my back in my cold bedroom, she was dreaming, her paws twitching, her tail occasionally wagging. She wouldn’t want me to tell you this part … her small, pink tongue was sticking out of her mouth just slightly.

My oncology check-in was uneventful. The care team is mostly happy with my situation, reminding me to drink at least 64 ounces of water every day and moisturize, moisturize, moisturize. They Snow White-d me when I arrived:  “Let me see your hands.” It made me laugh but I doubt they got the reference, especially not the PA who seems somewhat humorless.

I’m doing well, more tired than I think I’m capable of describing. And wow, the chemo brain has set in. I forget the most mundane things – things I’ve never before forgotten. You can advise me to make lists and use a calendar – go ahead; I know you want to. Funny thing is, I do both and I STILL forget really mundane things. We’re talking about everything from a take-out order for one of my kids to a grocery item to a doctor appointment. 

Haley and I walked 10,800+ steps yesterday. It was cold and windy, not the best time to marathon-walk. Nonetheless, we walked. At day’s end, I was so tired that I tried to go to bed without eating, not feeling in the least inclined to bother. But all three of the kids stepped in to make sure I ate: Wheat Chex (the best Chex cereal; I will accept no argument to the contrary) and a banana was my choice and it was about all I could manage, lol. 

Today, we’re back at the spring cleaning. It’s been so much fun. I can see why the Maria Kondo’s of the world encourage it, though I think you have to be in the right mindset to see the value. We’re excited to be freeing ourselves of the burden to care for objects that no longer serve; but even five years ago, we wouldn’t have been able to do this.

My favorite place – one that has helped us a lot through this experience – is Construction Junction, a re-use store here in Pittsburgh. I’ve donated the unwanted and found new treasures that I’m really excited about. For example, we got two antique light fixtures. One will replace the gaping hole in the ceiling where the previous light was before the screws in the – oops, they cut the hole too big – drywall gave way, allowing the fixture to fall off the ceiling and swing by fragile wires. Now, all I have to do is repair the drywall and paint before I can hang that light – next week, if the chemo doesn’t chop me off at my knees. 

We were planning to put the second fixture – yes, we have a place for that, actually two. Cleaning out is not successful if you add back in all sorts of new stuff. SMH Anyway, the final location for the second fixture was being hotly debated – over the dining room table or in the kitchen. The kitchen will win because we realized that the dining room ceiling – my turn for an oopsie – isn’t wired for a light. The current monstrosity has a cord and plug, which I KNEW, obviously, but just kind of forgot in the midst of my passionate argument in favor of the dining room. 

We are, however, considering solutions for the dining room. Both of us are leaning toward removing the monstrosity (donating to Construction Junction, of course) and using ambient light instead. The monstrosity is so big that it’s forehead level if we move the table AND it is impossible to clean. There are reasons to keep something that’s been labeled hard-to-clean but “hating it” isn’t one of them.

Work was interrupted multiple times by dogs. It was so nice that the puppies were convinced that it would be warm. They insisted, multiple times, that it would be warm THIS TIME. Their disappointment was palpable. Mine would be too if only I had fingerprints but they were stolen by capecitabine. I hope I get them back later this year because dropping stuff is freaking annoying. Still, we were able to enjoy the sun, if not the temperature. Soon, we’ll have both.

Much love and time to smell the spring flowers.  

Take Time to Smell … Paint Stripper?

Free To A Good Home

Chemo Break Week – it’s like Spring Break without the alcohol, loud music, sunburn, and strangers trying to touch your butt. 

I’d love to say that day one of my off-week was incredible. I’d love to say that I won the lottery even though I didn’t play. I’d love to say that I can eat any food without it going straight to my thighs. You get the picture. Just be thankful you weren’t with me last evening/night. It wasn’t pretty. But enough about that. 

We’re spring-cleaning this week, while I have a little more energy. First, I do my daily writing sprints. Then, we work on cleaning up, cleaning out, and moving on. It’s a task my therapist recommended, something I dreaded, to be honest. But we’re finding it less difficult than I had expected. I guess we’ve gotten a clearer picture of what matters most to us. 

I know we could sell things but mostly we’re giving them away. That’s not some sign that I’ve received terrible news or anything. It just means that we want our living space more energizing and don’t see a reason to sell what can benefit others if freely given. 

In other news, my eldest son just finished developing a tabletop RPG that’s going to be included in a game bundle. All proceeds from the sale of the bundle will go directly to an LGBTQIA+ children’s shelter. I’ll give you all the details when the game becomes available. The entire bundle will cost $5 and will include somewhere around 500 games. Yep – that’s approximately $0.01 per game. Watch this space for the details if you’re interested in supporting an at-risk community and a great bunch of indie game developers.  

Tomorrow’s a big day – my round 1 chemo check-in with my oncologist. We have lots to cover – results of my latest bloodwork, the origin testing – gene tests that help determine if there’s something about my cancer that warrants special treatment, my delightful chemo side-effects, and … my weight loss (GULP). Should be a fun day. Might need a nap after.

Much love.

Free To A Good Home