Take Time to Smell … Paint Stripper?

The nightmare was bad, the kind that makes you choose not to sleep for the remainder of the night. It was 4ish when I awoke, though, so I lay in bed, listening to the sounds of the early morning: two foxes talking as they headed toward the park, early birds calling to each other – more likely warning others off but as a non-speaker of bird, I couldn’t say for sure. 

There was a gentle movement at my back. One of my doxies has been sleeping with me; and curled tightly against my back in my cold bedroom, she was dreaming, her paws twitching, her tail occasionally wagging. She wouldn’t want me to tell you this part … her small, pink tongue was sticking out of her mouth just slightly.

My oncology check-in was uneventful. The care team is mostly happy with my situation, reminding me to drink at least 64 ounces of water every day and moisturize, moisturize, moisturize. They Snow White-d me when I arrived:  “Let me see your hands.” It made me laugh but I doubt they got the reference, especially not the PA who seems somewhat humorless.

I’m doing well, more tired than I think I’m capable of describing. And wow, the chemo brain has set in. I forget the most mundane things – things I’ve never before forgotten. You can advise me to make lists and use a calendar – go ahead; I know you want to. Funny thing is, I do both and I STILL forget really mundane things. We’re talking about everything from a take-out order for one of my kids to a grocery item to a doctor appointment. 

Haley and I walked 10,800+ steps yesterday. It was cold and windy, not the best time to marathon-walk. Nonetheless, we walked. At day’s end, I was so tired that I tried to go to bed without eating, not feeling in the least inclined to bother. But all three of the kids stepped in to make sure I ate: Wheat Chex (the best Chex cereal; I will accept no argument to the contrary) and a banana was my choice and it was about all I could manage, lol. 

Today, we’re back at the spring cleaning. It’s been so much fun. I can see why the Maria Kondo’s of the world encourage it, though I think you have to be in the right mindset to see the value. We’re excited to be freeing ourselves of the burden to care for objects that no longer serve; but even five years ago, we wouldn’t have been able to do this.

My favorite place – one that has helped us a lot through this experience – is Construction Junction, a re-use store here in Pittsburgh. I’ve donated the unwanted and found new treasures that I’m really excited about. For example, we got two antique light fixtures. One will replace the gaping hole in the ceiling where the previous light was before the screws in the – oops, they cut the hole too big – drywall gave way, allowing the fixture to fall off the ceiling and swing by fragile wires. Now, all I have to do is repair the drywall and paint before I can hang that light – next week, if the chemo doesn’t chop me off at my knees. 

We were planning to put the second fixture – yes, we have a place for that, actually two. Cleaning out is not successful if you add back in all sorts of new stuff. SMH Anyway, the final location for the second fixture was being hotly debated – over the dining room table or in the kitchen. The kitchen will win because we realized that the dining room ceiling – my turn for an oopsie – isn’t wired for a light. The current monstrosity has a cord and plug, which I KNEW, obviously, but just kind of forgot in the midst of my passionate argument in favor of the dining room. 

We are, however, considering solutions for the dining room. Both of us are leaning toward removing the monstrosity (donating to Construction Junction, of course) and using ambient light instead. The monstrosity is so big that it’s forehead level if we move the table AND it is impossible to clean. There are reasons to keep something that’s been labeled hard-to-clean but “hating it” isn’t one of them.

Work was interrupted multiple times by dogs. It was so nice that the puppies were convinced that it would be warm. They insisted, multiple times, that it would be warm THIS TIME. Their disappointment was palpable. Mine would be too if only I had fingerprints but they were stolen by capecitabine. I hope I get them back later this year because dropping stuff is freaking annoying. Still, we were able to enjoy the sun, if not the temperature. Soon, we’ll have both.

Much love and time to smell the spring flowers.  

Take Time to Smell … Paint Stripper?

Something Wicked This Way Came

Something happened last week. I can’t talk about the specifics and I’m not sure I would even if I could. My thirteen-year-old saw something, he said something, and he saved someone. He responded exactly as we all hope our children will and I’m utterly amazed at his courage, his kindness, his maturity. 

My boy did the right thing, perturbed that it might violate a trust, that it would be embarrassing, that it might alienate him from his friend-group, that he might not be believed (he had receipts just in case), that it would require action in a bystander world. He doesn’t want praise or attention; in fact, he told me that he’d like to pretend it never happened. I have to agree. What I really want is for my already traumatized child not to be more traumatized. If I could erase last week, I’d have to think deeply to find reasons not to do exactly that. 

I’m so angry and sad about the whole big mess. Absolutely everyone we needed was there. Everyone responded wonderfully. Everyone helped us. So, as my daughter would say, “What’s the T?” 

What IS the T? If you’ve ever read a management book (god help you), you know that some people seem to thrive on chaos. I always hope I’m not one of those people but it seems like I live in the midst of it. A good amount of my adulthood has been teetering on the brink of catastrophe. Why should my kids’ lives be any different? We are the ball in the pinball machine, pinging from obstacle to obstacle, lights flashing, bells ringing, until we’re hit by a paddle and thrown back into the chaos.

I wonder, sometimes, if trauma begets trauma, if some individuals — unknowingly, certainly unwillingly — are drawn, like magnets, to new and different tragedies … on repeat. If you believe in a god, you’ve undoubtedly heard that old saw:  God only gives you the burdens you are strong enough to carry. Boom. Not strong enough? No worries; prayer is the answer. You can just ask god to carry those burdens for you. Boom (again). For those of us who are less confident in the weight-bearing power of prayer, the solution is far murkier. And for both groups, the outcome is the same (with apologies to all of you who believe in the power of prayer).

My mom was a terrible Catholic (according to her) but she believed very, very strongly in the Blessed Mother. I saw a sign over the weekend that condemned “Mary worshippers” to Hell (the sign listed everyone who is condemned — it was a long sign and the sign-bearer was, of course, the only one not on the list). The Mary-worshipper label was a solid fit for Mom. Her favorite prayer was the Memorare. She used to talk to me about the meaning, about it being a sort of chastisement. It’s my humble and untested opinion that Mom was expressing what many women continue to express today — that longing for a voice — and that brings me to this past weekend.

I have absolutely no interest in football, though I did stand on the field during pre-game warm-ups once. That was an experience for sure but it hasn’t made me a fan. I can’t abide the lack of representation in leadership positions. Why are there so few owners or head coaches of color? I might not have known it was Super Bowl weekend, but as a Pittsburgher, I absolutely know who Coach Tomlin is. But if you cite him as your example, I’m just going to come back at you with the total number of coaches of color — single digits, folks. Single digits! You can’t explain that without using racist tropes because there is no explanation that doesn’t include racism. Period.

Anyway, my nephew teasingly called me un-American this weekend when he had to remind me that it was Super Bowl Sunday. I didn’t watch. I didn’t even know which teams were playing and I only know who won because of that tweet (don’t pretend you don’t know what tweet I mean). If you try to tell me it didn’t happen, I’m going to throw a certain George Orwell quote at you.

After I saw that there was a controversy brewing over the half-time show, I watched it on youtube. What I saw was two powerful women performing on national television, using their voices (yes, I chose that word deliberately) to highlight issues important to them. Okay … never mind. Nothing says manufactured outrage over “sexualized” dancing and “televised porn” like being publicly called out for ignorance and racism and basic inhumanity. 

My favorite our-educational-system-has-failed-us moment is when people began speculating that JLo was wearing the Texas flag. I LOVE teachers but I am appalled by our national lack of critical thinking skills and, frankly, by our ignorant, foolish, entitled Secretary of Education. Even with a research device in each of our hands, we eagerly retweet, post, share, and like garbage because it makes us feel (better, teary, powerful, righteous, smart — you choose). No, JLo (you know, from the Bronx?) is not strutting that national Venus-shaped stage in a Texas flag. This isn’t Texas shade, BTW, which you will also understand if you are using your critical thinking skills. 

Well, clearly, I’m still angry about the trauma my boy endured. I can hear it in the words I’m typing. The problem is, of course, that I can’t unleash my mom-rage on … anyone. I want to use my not-inconsiderable verbal skills to destroy the responsible party in defense of my baby but that won’t happen. There is no person responsible for this week’s near catastrophe. 

Researchers say that we look for someone to blame because placing blame provides “resolution” and “closure.” It’s tempting to look for somewhere to place blame and I’ve veered onto that dangerous road a couple times throughout this experience. It’s wrong, though, and I’m going to fight my baser self. As with Ken’s death, there’s no closure. It was unfair and it shouldn’t have happened. Period. 

On a good note: I’m working on another book. That’s two underway in addition to the one I just finished (in case you are counting). Neil Gaiman recommends juggling about 5 projects at a time and since I’d like to be as successful as Neil Gaiman (cough), I’m modeling my writing behaviors after him (cough, cough). It’s a teen/adult book which is a nice contrast to the middle grade stories I’ve been focused on. I’m not going to talk about the plot but I will say that it’s … weird. Honestly, there’s nothing more satisfying than giving my severe weirdness an outlet. 

Next up … a short story about Pennsylvania’s favorite Phil. 

Much love.

Something Wicked This Way Came