Pancreas Goes On Performance Improvement

Me: So, Pancreas, do you know why I brought you into my office today?

Pancreas: Is it about those vacation days I asked for? Because I’ve already bought the plane tickets. 

Me: Sigh. 

Me: First, as a pancreas, you don’t get vacation days. Because you are a PANCREAS. If you were the Skeletal System, we could talk about days off.

Pancreas: I work very hard.

Me: (sotto voce) And now we come to the crux of this discussion. 

Me: Are you entirely sure about that? 

Pancreas: That I work hard? Yes, I’m sure. Damn sure. There’s no harder working organ in this body.

Me: Okay. Okay. I think I should stop you right there, before Heart hears you. Or Lungs. Or Central Nervous System. Or Liver. Liver is working at full capacity even though it’s about half the size it was two years ago. Can you say the same?

Pancreas: Unfair. I cannot be cut in half. 

Me: (sotto voce) Well, you’re working like you were.

Pancreas: (suspicious) What was that? I didn’t quite hear you.

Me: I said, “I’m so cold. Brrr.”

Pancreas: (confused) You’re exactly 97.9 F. Perfectly normal.

Me: Right. Let’s get back to your performance. Can you explain your reduced enzyme output?

Pancreas: Resources are limited. I’m getting up there, almost 60 years old, you know. You had that surgery last year. It threw everything off. I’m tired. I need a vacation.

Me: Sigh.

Me: I assume you know that the heart is older than you are, by like 2 weeks. ANYWAY….

Pancreas: (makes raspberry sounds) Heart. Blah Blah Blah. All I ever hear is that Heart is better than me. Hmph.

Me: Look. Your enzyme production is down. Stomach and Intestines are requiring external enzyme support. I’m going to have to put you on a performance improvement plan. 

Pancreas: Oh yeah. How about I just quit? 

Me: Stomach and Intestines both think you already have. That’s why they’re demanding external enzyme support. Pancreas, this performance improvement plan is for your own good. If you don’t start making enzymes, you’ll be replaced entirely by enzyme pills. You don’t want that. You’d miss working. We’d miss your cheerleading at the daily stand up discussions. And your jokes! I’m still laughing about the hippo-zippo one you told last week. 

Pancreas: (a little teary) You liked that one? 

Me: I sure did. Do you want a tissue?

Pancreas: (nodding) I’m sorry. I’ll do what I can to step up productivity. I’ve just been feeling a little down. It’s the season, you know? You eat so much food during the holidays. 

Me: (angry face)…

Pancreas: Not that I’m blaming you. 

Me: Uh huh. Suddenly I’m excited to start taking those enzymes. (glares menacingly at Pancreas)

Much love.

Pancreas Goes On Performance Improvement

A Million Years Ago….

A million years ago, I had the very great pleasure to spend time with a team of 25 Indians who traveled to the US to work on a project. Today, I was ordering pastries (at a Paris Baguette) from a young Indian man and he did something that made me feel such melancholy for that team from so very long ago. The work? I don’t give two hooey’s about that anymore, though at the time we were making history. Today, I miss the people on that team. 

So, what did that young Indian man do? Well, it’s a little hard to describe but basically it’s a head motion common in India, a sort of head nod/shake. The first time you work with a large group of Indian men, you’ll wonder why they appear to be shaking their heads in a sort of “no” gesture when you’re talking to them. They aren’t, in fact, saying “no.” They’re telling you to continue, that they’re with you, grasping what you’ve said. 

When that young barista did his nod/shake, I had to hold in the outpouring of *something* that tried to spew forth in a glory of half-sentences and laughter. Yes, I did, in fact, keep it to myself. As memories go, it’s a little inexplicable, a memory that one holds close because no one else will really understand. I doubt that I’ve thought of that head shake movement in ten years but today, in a second, I was transported right back to a huge room at the top of Highmark’s Pittsburgh building, leaning over a table as I tried to convince one of the men that I was right about the enrollment process. I did not win that argument.

Have you read Project Hail Mary? I’ve been having difficulty finding time to sit down with a book but I was on a longer drive recently listening to it. And I’m speechless. It’s that good. I’ve only cried twice but there’s still three hours left in the book so, you know, plenty of time for more tears.

 I spent a good part of two days in the company of a person with cognitive decline. They were having some work done in the house but sometimes can’t remember the work that’s being done and can’t answer questions about the work. So, I’m there, keeping them company, and providing support when there’s a question. It’s exhausting. Part of it is answering repeatedly the same question without getting annoyed. When I was in training at Disney World, our trainers would remind us that we could never be frustrated over the number of times we answered a question–about the time for the next show, the location of the bathrooms, why they couldn’t bring their ice cream into the theater, why they couldn’t take their beer from the building–because, as the trainers said, that was the FIRST time that person had asked ME that question. 

What, however, does one do when the same person asks the same question or a variation thereof about 16 times in an hour? Well, one still cannot get frustrated because the cognitively declining person thinks they’ve never asked that particular question before. Mostly, frustration isn’t the issue for me, to be honest. Coming up with interesting distractions IS. My daughter gave me a big container of buttons–yep, buttons–and suggested that, as a project, this person might enjoy sorting the buttons by color and putting them into another container (with compartments) that Haley also thoughtfully provided. It was great. Worked like a damn charm. They found it soothing. I had a solid 30 minutes of peace to just take a breath. I owe my girl BIG TIME for the idea. 

On the flip side of cognitive decline symptoms, I was visiting my not-my-aunt Ginny and she decided AGAIN that we needed to make a break for it. She concocted several very elaborate plans to get us out of the facility and into my car. The woman can’t walk anymore but she’s somehow maneuvering herself FASTER THAN I AM toward the exit. I keep trying to turn the wheelchair but she’s digging in her heels. How is she this strong?! 

Feeling rather melancholy recently in the run up to the quarterly scans, I decided it would be a good idea to think about all the strong women in my family who have left this earthly existence. There are so many. I don’t know if that means I got more than my share or if, more likely, we all have had strong women in our lives that we just, maybe, didn’t realize were so amazing because we were children at the time. I was calling on them, I guess, to give me strength, lift me out of the doldrums, who knows…. The mental exercise accomplished none of those things but did make me miss them more than ever. 

Scan-wise, I have no updates to share. Scans were December 1st because nothing says “Happy Freakin’ Holidays” like starting the month by checking one’s body for bips and bops that don’t belong. I follow an author, breast cancer remission, who, this week, talked about the cruelty of the wait. She has a mass that might be nothing or might be something. She has a biopsy in two weeks. When she said that, in her Insta reel, I felt that same stomach drop that I get every single time I have scans. Disease takes normalcy as well as health. It steals peace and quiet moments of joy, if it can. 

I know the strategies of distraction and mindfulness but I am also deeply familiar with the anxiety of the wait–for news, for treatment, for results, for appointments. Even when the news is good, there is regular checking for the possibility of new bad news. GAH. It’s a relentless battle. And then well-meaning scientists conduct a study to see if cancer patients are more likely to be depressed than healthy people…. I’m sorry. Was that a question? What could their hypothesis have been other than–OBVIOUSLY? What are they going to do with those incredibly obvious results in a grotesquely under-funded mental health industry? 

Anyway, happy December to all who celebrate the last month of the year. I’ve always thought that the end of the year should come with a sticker, like a checkmark or a big smiley face, and then we should get recess. Instead, we start the year with taxes due, a new deductible on our health insurance ($9,100 for me), and debt from holiday extravagance. I’d much rather have the recess, thank you.

A Frank Nowalk original is up for auction this week. I desperately want it to be purchased by someone who will love it as much as he loved making it. It’s an incredible homage to Pittsburgh and currently has NO BIDS on it.

Also, if you look at the rest of the catalog, you’ll find some Ed Eberle art. If you don’t know who he is, check him out!! The Eberle Gallery is still in Homestead and very active in supporting growing artists. 

Musical interlude–”Christmas Time Is Here” by Bela Fleck and the Flecktones. The whole Jingle All The Way album is delightful. New takes on familiar music. Lots of banjo, some didgeridoo, and more. You won’t be sorry. And if you buy now, you’ll get this set of steak knives, sharp enough to cut through this can of cranberry sauce. 

Much love…and maybe some good luck?

A Million Years Ago….

The (Early) Winter of Our Discontent

Francis Nowalk’s here in Pittsburgh is closing its doors after more than 75 years. Frank, as he was called, worked in the store he built until Covid brought him literally to his knees in 2023. After he passed away last year, his children and grandchildren began the process of closing up the famous business, finally reaching the stage of selling off the lighting solutions and the brick-and-mortar multi-story showroom and warehouse. https://pittsburghquarterly.com/articles/a-pittsburgh-treasure/  

Since we’ve been looking for period-appropriate sconces to replace the modern lighting in our very Victorian house, we raced to their sale and what a delight it was. We were even lucky enough to get one of his handmade pieces (not even realizing he’d made it until one of the sons told us its provenance). I can’t begin to tell you how dirty we got, digging through boxes of bips and bops. I haven’t had so much fun spending money in a long time. 

There was something very bittersweet about having his children, all around my age, reminiscing about various pieces as they were sold. “Wasn’t this in the house at one point?” one sister would ask and another would agree, while one of the brothers answered, “No” in a very confident voice. Occasionally, while we were there, we’d see one of them grab something from the showroom. They’d call out, “I’m taking this to the car.” A brother or sister would sigh and call out, “Okay.” The siblings all laughed about it, though, and told us that everyone in the family has pieces from their dad’s business. “He lives in all our houses,” one of the daughters said, which is a lovely legacy. I think most of us would like to know that we’re remembered with such sweetness.

I went to a screening of A Princess Bride that included a Cary Elwes Q&A. As a single ticket, I was able to swoop in at the last minute to get a cheap seat in the third row, perfect placement for a good view of the movie and the Q&A after. There was an interesting prohibition; absolutely no pictures of Cary were permitted. We were warned that violators would be politely escorted out. 

The screening was a delight. It seemed like everyone there knew the movie. Some attendees were dressed up as Buttercup, Wesley, or the dread pirate Roberts. I even saw a six-fingered man (without his sword, of course). With the first use of “As You Wish,” there were ooohs and aaahs. When Andre the Giant appeared, the room erupted in cheers. It was wonderful. 

I’m slightly less enthusiastic about the Q&A. Cary Elwes was very funny, very polished, very emotionally removed from the event. I felt like he’d memorized his responses and enunciated them with a minimum of engagement. I may be alone in that impression, as there was a lot of laughter during his stories. They were good stories, for sure. I just felt like he’d told the same ones a thousand times. Because he has. You know?

In 2012, I think it was, my husband got us tickets to see William Shatner’s one-man show, Shatner’s World: We Just Live In It. It was my birthday present, as I am a huuuuuuuge OG Star Trek fan and might, if needed, be called upon to recite dialog from most of the 80+ episodes. So far, surprisingly, I haven’t needed to do that. But I’m ready. You know. Just in case. 

Anyway, it’s likely no surprise that I’m comparing Cary Elwes’ Q&A with Shatner’s one-man show. The difference for me is stark. Every word of Shatner’s show felt like a conversation, like he was sitting in an easy chair across the room, reminiscing about his life, even though that show ran for, maybe, three weeks on Broadway before he took it on a national tour for another eight months. It was magical, slightly deranged, and riveting to watch. 

Speaking of Shatner, if you haven’t listened to his album Has Been, you have missed something spectacular and should rectify that as soon as possible. Unlike his earlier work, this masterpiece produced by Ben Folds is often wrenching and intimate. He reflects on his life, his many mistakes, his public image. One of the interesting things about it is that listening will not make you like Shatner the man anymore than he deserves but somehow it allows you to empathize with him. I like to listen to it on longer drives, when I can really focus on the lyrics. In my humble opinion, it is not the album that you play in the background while doing dishes. 

In other music news, if you’re in the area and you’re not going to see The English Beat, are you even actually in the area? I’ve been following them for a looooong time but this will be my first time seeing them live. The venue is table seating near the stage and then some sort of balcony seating in the back. My seats are at a table. In fact, I purchased the entire table and then invited some people to join me. I just can’t bring myself to sit at a 4-top with three strangers. It is too awkward. Well…okay…the truth is that I’m too awkward. 

Winter has arrived earlier than expected. The trees, overnight, made a yellow carpet of leaves on Negley Avenue, covering the sidewalks and road. Truly, Dorothy could have found her way easily on that not-brick road, despite the blustery wind. Although the temperature rises slightly during the day, the cold Canadian air continues to rustle empty branches, whip hair into eyes, and wrestle unbuttoned coats wide. 

An elderly woman enters the coffee shop, wool coat buttoned to her neck. She has on a fanny pack, the strap at her waist around the back, the pack in front snuggled lower, below her curves. She waits patiently for her drink, which the barista announces loudly, a large peppermint hot cocoa with whipped cream and a chocolate drizzle. As she walks by me, her gold dangle earrings glint in the afternoon light. She inhales the warm peppermint scent wafting from her cup and takes a delicate lick of whipped cream before stepping into winter’s windy embrace, her gray hair tousled by the breeze. 

Another woman enters the coffee shop; a few errant leaves join her, swirling in a circle around the brick floor. Her silver hair hangs to her chin in a bob that curls under, something I could never reliably achieve. She’s wearing a puffy coat the color of lilac. How is it that some people look effortlessly stylish and some people (me. I mean me) look effortfully like we close our eyes before we pick out our outfits?

Online guidance suggested creating playlists of music familiar to my cognitively declining acquaintance. Reluctantly, because I have to listen to it too–haha, I’ve done it: Leon Russell, The Beatles, Peter, Paul & Mary, Simon & Garfunkel, and a few early 70s bands, like Moody Blues, Doobie Brothers, etc. I passionately dislike The Beatles–I know, I know–but in early childhood, I was listening to my parents’ 40s and early 50s music. I literally had two albums of my own: a Jackson Five and the Carpenters. The Beatles, in particular, were NOT on the record player. Later, when my dad was an Outlaw Country fan, we were listening to 8-tracks of Willie and Friends. My mom’s favorite music was silence. She abhorred Outlaw Country, lol. I like Willie, in particular, but I prefer his folk and indie music, such as Last Man Standing. He’s renowned for his lyricism and I find his later stuff particularly smart and quite funny. I also admire his frank disdain for people who have forgotten or perhaps deliberately misunderstood what he represents.

This morning, I entered the coffee shop early and saw an acquaintance absolutely immersed in his computer screen. I waved but he didn’t notice so I bent to his eye level and waved until he looked up and saw me. It made me, him, and the barista laugh. Day’s goals met. 

I haven’t talked much about my health but had a reminder this morning from a friend that silence can be distressing to others. So, quick update and then we won’t talk about it again unless it’s necessary: September scans picked up a new spot too small to biopsy. It’s in the gallbladder fundus, which, so that you don’t have to google, is at the top of the gallbladder under the right lobe of the liver. (I no longer have a left lobe. lol) 

It might be something. It might be nothing. My healthcare team calls it “concerning,” though not to me, which I find rather funny. They like to be very optimistic and cheerful. I’m an optimist, too, and continue to buy green bananas. (Why do I know they call it concerning? Because a resident at my PCP’s office read the medical record to me. I’m pretty sure they weren’t supposed to. haha) My next scans and bloodwork are December 1st. I’ll see my healthcare team again in mid-December, at which point we’ll know what’s next, whether it’s more scans, surgery, treatment, or a combination thereof. 

Sure, I am occasionally awash with, to paraphrase Aragorn, “…The fear that would take the heart of me.” Cholangiocarcinoma kills 80-90% of patients. I wish this weren’t my path. “”So do I,’ said Gandalf, ‘And so do all who live to see such times. But that is not for them to decide. All we have to decide is what to do with the time that is given us.’” (Tolkien sure knew how to turn a phrase.)

I’ve had all the very difficult conversations. I’ve updated the will. I’ve made all the lists–finances, bills, passwords, etc. There’s even a spreadsheet with all the home repairs I’ve done over the years since Ken died. I’m probably more paper-work prepared for death than most of you who ALSO have no idea when you’ll die. (So, maybe, get on that. It will benefit your family.) Anyway, I’m as determined today as yesterday, and the day before, to keep living until I die. Some days the worry wins but most days I win. And now we’re done with that topic. If there’s more to say, I’ll say it when I’m ready.

Much love.

The (Early) Winter of Our Discontent

“It’s A Dangerous Business, Frodo….”

This morning’s adventures started, just as Bilbo predicted, with the opening of my front door. Our house…this is all connected; just trust the process…faces east. As soon as the sun is above the houses, the front garden gets full sun for several hours. The neighbor’s cat knows this. See exhibit A. 

Exhibit A: A cat sleeps in the middle of a late fall garden, a spot of white in a world of deep browns, greens, and reds.

Without disturbing the cat, whose name I have never learned, I began my morning walk. I am sans puppos currently because we went on a slightly too-long walk on Friday (just 2.5 miles but you would have thought it was a trek to the other side of the moon for all the post-walk dramatic sighs and groans as they SLEPT). I’m going to take them for a half-miler tonight but they’re sleeping in this morning (SPOILED!). 

After leaving my own yard, I bumped into my next door neighbor who was waiting for me so he could ask me about the huge shipping crate that was left at our house on Thursday. (I bought a 55” Itchzak Tarkay painting.) See exhibit B. While we were talking, another neighbor arrived with his dog, Max, who sang for us. That’s not 100% accurate. He sang for treats from us. Details. Details. Max has met my dogs. He loves all dogs, except my dogs. He’s afraid of my dogs who combine excessive interest in personal space with excessive barking. Max likes neither of those things.

After adoring Max the appropriate amount, I wished both neighbors an excellent day and continued my stroll. It really is a beautiful day, sweater weather, as some would say. The leaves, mostly fallen at this point, are dry and crunchy under foot. The colors are still bright, almost glittering in the sun. 

Exhibit B: An empty wooden shipping crate on the sidewalk, open side facing the camera. With its pallet, the crate is 5’6″ in height.

About half a block down the street, there’s a house with an Audubon-certified bird garden. They also have bird feeders. This morning, Woody Woodpecker was visiting. See exhibit C. Woodpeckers are commonly heard in our neighborhood but generally difficult to spot. The feeder is, I acknowledge, cheating but I play the hand I was dealt.

Less than a quarter mile later, I saw one of the neighborhood beagles. This one is the friendlier of the two. I bent to receive his usual dirty paw marks on my knees and slurpy lick to my chin. He couldn’t stay, though. According to his owner, they were headed to the college campus to soothe stressed college students. The beagle enjoys this activity immensely. The neighbor says that the college students are equally eager for his visits (the beagle’s visits, the man is merely the petting conduit).

Eventually, I decided to get breakfast at the diner, which was surprisingly busy for a Monday after what, I learned, was a Steeler’s loss. I don’t watch television, including football, and was unaware of the loss until a grieving server informed me. I tried to cover my ignorance with a “Devastating loss” comment and he rounded on me. “Infuriating,” he snapped. So, maybe, next time, I should go with the safer and more honest, “Didn’t watch the game.” lol

Exhibit C: Don’t let the bird decor fool you. The woodpecker is in the center of the frame, eating from the feeder.

After walking off a surprisingly mediocre breakfast, I arrived here, at the coffee shop. When I got here, it was staffed by a single barista who was working capably under tremendous pressure, though she confessed to me that she was internally overwhelmed. Since the line was eight people deep and growing, she was far more composed than I would have been. And so I told her. 

A very attractive man, wearing an unnecessary camel overcoat and jeans, just entered the coffee shop with a young woman in what my mother would have called a car coat. It is pink and lovely. They stayed just long enough to determine they were in the wrong spot. They stood outside talking for several minutes before walking down the sidewalk back the way they’d come. Sometimes I wish I had the Weasleys’ Extendable Ears so I could feed the nebby girl who lives inside me. (Yes, jkr is horrible and less clever on further readings. I like the ears though.)

Behind me, two young women are working, their computers open on the table. They’re talking, too, though I haven’t been listening in–I know! It seems like I always listen. When they started whispering, though, my interest was peaked. I turned off my music, the better to hear them. Disappointment awaited. It was dull gossip, not even worth their effort to be quiet. I learned something though. The whisper is what drew my attention. If they’d have gossiped in their normal voices. I wouldn’t even have noticed. 

Oh, dear. Two young people are standing outside fighting. She’s facing me, bundled up like it’s -5F. For context, I walked here in jeans that are cuffed above the ankle because they’re too short, a short-sleeved shirt, and a cardy that is now on the back of my chair. He’s wearing jeans, a sweatshirt, and a backpack. His arms are crossed over his chest. He’s mad. She’s sad. It’s a bad day (I’m stopping the rhyme here, before it becomes annoying), maybe for both of them, which, as I’m typing this, culminates in him shaking his head and turning to leave. She follows behind for a few steps, still talking. And scene. 

So much happens if you just sit and watch. A young man just left the shop with a coffee. His beanie and sweater match. There’s a smile on his face. Is he smiling about the interaction he had with the baristas? Enjoying a memory? Absorbing the light and sweetness of the day? I think that’s for the viewer to decide as they experience that story from their own seat.

Looking for something to listen to? Why not turn up Bill Withers, “Lovely Day?” It’s just right for this moment.

Much love.

“It’s A Dangerous Business, Frodo….”

Forgo the Filter: Say the Mean Part Aloud

The weeks are busy, temperatures falling like the leaves. Gusty winds cause the trees to litter bright yellow and deep brown detritus on the sidewalk. As I’m watching, a dark red leaf is whipped into the street by the wind and smacks someone in the face. They start visibly and rub their cheek. Strange that a leaf can hurt like a word.

I’ve been helping a lot, recently, with a person who will remain anonymous (privacy, yo). They are losing life skills and sometimes boundaries. We went to breakfast recently and they asked me whether a specific individual was circumcised. That’s not even their most recent embarrassing question. I handled it like a champ, but not all of the people in hearing range were as comfortable. It was, you see, quite loudly asked. 

Things they said (in a NOT-a-whisper whisper) during our breakfast: Is that person a boy or a girl? There should be better portion control (as a very large person walks by). This bill is wrong (it wasn’t). I don’t like eggs (they ordered eggs). It makes me laugh but also it can be sooo awkward. A few weeks ago, I took them to the farmers market and they said, “I don’t like honey” to the beekeeper. It’s like social media. I’m caretaking the person who, if they could understand social media, would reply to your blueberry pie post with, “I don’t like pie.” Words that could, with a tiny bit of effort, reside only in their head fall out of their mouth like items falling out of an open backpack hanging off a jogger’s shoulders. 

Unfortunately for me, our relationship could be characterized–on my part–as obligatory. We aren’t friends and, prior to their cognitive decline, we weren’t even particularly friendly. They rely on me now. I help willingly, even though, some days, this person says things so smack-worthy that I have to take a deep breath before I reply. The problem(?) is that, although there is undoubtedly a world in which I could just walk away, I don’t live in it. My kids ask me sometimes why I continue to help. There are so many reasons but possibly the most important is that I won’t treat this person the way they treat everyone. I will, I am determined to, act toward this person the way I think I should act. I won’t be like them. I will look back on my own behavior knowing that I did the best I could, not the least that I was able, though, occasionally, I have told them that if they don’t knock it off they will be walking home.

In a strange coincidence, two people in my life are declining cognitively. Unkindly, the one for whom I would do anything lives two hours away. Because she has sundowner’s, it is kindest to visit before lunch. After lunch, as the day lengthens into evening, her fear and anxiety overcome her conditioning; she lashes out physically and verbally. So, yes, planning is involved in every visit. I leave the house early, grab an iced tea from the coffee shop, and get on the road with a downloaded audiobook before 8AM. When I can see Lake Erie gleaming deep gray on the horizon, I know I’m almost there. If traffic favored me, I’ll have time to get breakfast, most recently at The Original Breakfast Stop. No matter what, though, I have to go to Romolo’s and get not-my-Aunt G her peppermint patties. Her favorite treat used to be chocolate chip cookies but something she can’t explain changed her preference. 

There is a particular grief to watching the end of days for someone you’ve known your whole life. My not-my-Aunt Ginny is a core person for me. My earliest memories include her. In my youth, months sometimes passed when I didn’t see her, but she’s always been there, a weight-bearing pillar of my existence. We’re not related by blood but she’s as close as any who are. She calls me one of her two girls. She can’t reliably remember my name, but she remembers that. 

Often, on my visits, I’ll push her wheelchair around the facility so she can wave to everyone. In the past, she told me stories that conflated the residents with former boyfriends, neighbors, and her six siblings. The stories were good, sometimes racy, and probably partially true, though it’s impossible to know for certain. Everyone I could ask is gone. None of that matters, though. The connection is the important part. 

We’ve reached that place in dementia, though, where we spend most of our visits just sitting next to each other, holding hands. She struggles to find words now and to maintain a thought long enough to say a full sentence. Often, she’ll start to say something, search for a word from the garbled data in her brain, and trail off without realizing it. One of these days she’ll stop entirely. Hand-holding will be all that’s left, then, and it will still be all that matters. 

Much love.

Forgo the Filter: Say the Mean Part Aloud

ChatGPT Lives In A Shipping Container

A couple with a baby in a stroller stopped in front of the old Apple store and looked at each other, confused. In unison, they pulled out their phones and started looking online, speaking to each other in Chinese. I was walking toward them and smiled. “Are you looking for the Apple store?” I asked. Again, in unison, they smiled and nodded. “YES,” he said emphatically and with relief. I explained that it had recently moved and pointed it out. He chuckled, “Ah ha.” She said, “Thank you, thank you.” They nodded and continued down the street toward the no-longer-iconic-looking store. It was a small experience, lasting less than two minutes, but lovely. A tiny exchange of connection.

The Revivalists are singing from the speakers at the coffee shop. I love their music. The lead singer, David Shaw, is a surprisingly awkward live performer. A good-looking man, he postures on stage, feather-preening and strutting like cock. (Do I mean it the way you think I mean it?) Probably the young people in front of the stage are delighted but I’m there for the music. And to shout “get off my lawn” with the curmudgeonly abandon of a middle-aged woman wearing practical shoes.

I met a friend for brunch. She looked like an advertisement for dressing well at any age. I looked like I picked out a tshirt from my 95 year old neighbor’s 1980’s cast-offs that have been sitting in a pile in her closet since Y2K. We had a lovely meal and walked around the community afterwards, finally stopping at the shipping container house under construction in Bloomfield. “The only shipping container house in Pittsburgh,” the signage advertises. We peeked inside and puzzled over how they plan to manage temperature in an all-steel structure. It is, so they claim, “far more resistant to rodents than the average stick-built home.” I guess they’re referring to that notoriously easy-to-blow-over house built by one of the three little pigs. 

There’s an elderly man across from me wearing a John Lewis “good trouble” shirt. As I’m admiring it, a young hipster-looking individual enters the shop wearing a “doing my best” hoodie. Same. Same. 

Two women are talking, sitting close together at the table next to me. They’re discussing another woman’s body: She’s very fit. (She is, but a bigger girl. You know?) Right. She has a curvy rear. (It’s quite round. But fit. She’s very fit.) Yes. I wish my boobs were as big. (I know. She has a RACK.) They both laugh. I can’t decide if they really like her or really hate her. We don’t need to discuss the incredible level of misogyny embedded in any discussion of a woman’s body by other women, particularly when they aren’t lifting her up IN her presence.

I’m editing a chapter right now and I’m thoroughly stuck. I can’t figure out what’s wrong. There’s something, though, for sure. I open the chapter, stare at it for three hours, tweak a word here or there and then sigh with frustration before closing the chapter and reopening it 15 minutes later as though something will have changed. LOL I think I’m going to delete the entire novel and just throw myself into a dustbin. Or maybe I’ll work on a later chapter to get myself unstuck. Which will I choose? Dustbin of history or more work on the book? TBD, I think.

Olivia Dean’s new album is upbeat and lyrical, with soaring harmonies. I particularly like “So Easy.” I am not listening to Taylor Swift’s new album. If I were to comment, which I do not intend to do, I think words such as “trite” and “juvenile” would work on the lyric “his love was the key that opened my thighs.” Perhaps one can become too comfortable in her fame. Certainly, with enormous wealth, one can find a writing partner other than an LLM.

I have had my first ChatGPT experience. Deliberately using passive voice here, a thing about which my former and favorite writing professor would have THINGS to say: ChatGPT was given an article that I wrote–I’m not going to get into the ethics of that right now–to review and edit. I then received a copy of the results. (My friend, if you are reading this, it’s all good. xo)

In a shocking turn of events, I found the results enlightening. ChatGPT is definitely not for me but I understand now how incredibly effective this LLM is at engaging with humans. I showed the output to one of my kids and told him that ChatGPT and I are dating. He did not find that funny, which makes it funnier to me, somehow. Anyway, my son and I talked about the results, what he made of the whole thing, what I thought of it, and the future of AI. 

A first reading of the results would suggest that I am a freaking genius who is moments away from winning a Pulitzer or Nobel in literature. My ego agrees completely with ChatGPT on this point. I drank its praise like water from the fountain of youth. But just like the fountain, all that praise is not real. ChatGPT isn’t a person. It cannot reason. It cannot think. It cannot evaluate your work for merit, talent, quality because those concepts are subjective. It is not capable of forming opinions. It isn’t a person. It does not feel. It cannot like you or hate you. It will use whatever information–true or false, conservative or liberal, fascist or antifascist–it is given. Remember, as you use it, that it’s dangerous to believe what a machine was taught to tell you. 

Much love.

ChatGPT Lives In A Shipping Container

Rose, Who Lived By Another Name

About 20 years ago, I was seated next to a quite elderly woman on a flight to Las Vegas. Her name is lost to my memory but I’m going to call her Rose, which I think she would have appreciated. 

Rose had that terrible middle seat in a full plane. Everyone hates that seat, of course, but she was okay with it. We hadn’t even taken off when she started talking to me. If you’re anything like me, you have your in-flight entertainment prepared in advance. You’re working or reading or napping or watching something on your device. If you’re anything like me, you’re not chatting with your neighbors, except for the usual “excuse me; I need to visit the restroom.”

I was not delighted but Rose drew me in. She introduced herself to me by saying that she was fighting cancer. Obviously, I’m paraphrasing but here’s the gist of her introduction: “I don’t have cancer,” she said. “I didn’t want it, didn’t ask for it, would give it back if I could. It’s a demon that I’m fighting. I won’t ever own it but I’ll fight it for the rest of my life.” 

She was on her fourth fight and untiring in her objective. It was daunting to me at the time, to think about that fight. I didn’t understand, hadn’t had much experience with cancer yet. My paternal grandmother died within a month of her cancer diagnosis, long before the treatments that exist today, long before I met Rose. 

I could see how fierce she was. And joyful. She laughed often on that flight, telling me her story, asking me about mine–though, to be honest, mine seemed very small compared to the very big and important life Rose was living. She was a tiny woman, you know, whose spirit was the size of a dragon. I can still picture her, sitting to my left, a neck pillow around her neck, a book in her lap that she never opened and occasionally handed to me while she dug something out of her purse. 

Her hair was short and curly, more salt than pepper, her eyes brown, marked by laughter. It lined her cheeks, too, curving around a big, wide smile that, you might say, she shared generously. Her laugh was bigger than her small frame but suitable somehow. 

I think about her strength, her determination often and I believe, though I only knew her for five hours some 20 years ago, that she’d be delighted to have made an impression. Even if she won her battle with the demon–something that I’ll never know–she’s likely gone. But like all of us, she’s left memories that keep her alive. And for me, they’re good ones. 

Much love.

Rose, Who Lived By Another Name

Weed Pens and Pompadours

One of the great delights of sitting at the window of the coffee shop is the bakery across the street. There is steady traffic through the disappointingly ableist entrance, not surprising here on Walnut, where accessibility was an after-thought. The view of the interior is blocked by the seasonally appropriate decor at the front window, currently big red and orange maple leaves. Patrons leave with boxes, bags, and occasionally a treat folded simply into a piece of bakery paper. 

Sometimes, they sit on a nearby bench to peek into their treat container, a likely event when they shop in groups. They lean into each other so they can peer together into the container and gently select their preferred treat. Just now, a couple leaves the store, holding a plastic container filled with orange jack o’lantern sugar cookies. She offers him a cookie. He reaches in, gingerly selects one, and takes a huge bite, nodding even before the cookie can have hit his palate. It’s going to be a good cookie. He already knows this. 

A heavily coiffed older man enters one of the expensive clothing boutiques. His hair is more salt than pepper, worn in a vaguely pompadour style. His jeans are black, with a thick, probably plastic, black chain clipped to his belt loop and, one assumes, his wallet. He’s wearing a leather vest over a short sleeved shirt and black Doc Martens. The man is feeling his style. If the Insta account, keeppittsburghdope, were here, there would be a photo shoot for sure. 

Three young men are standing on the street corner and are they ever trouble on two legs, the blonde in particular. He just took a “secret” hit of his friend’s weed pen. I watched and laughed when we made eye contact. Yes, my dear child, I saw the whole thing. He nudged his friend to hand off the pen and pulled him across the street. Hopefully, they aren’t running from me. I couldn’t give less of a damn what he puts in his body, though I do find his lack of discretion incredibly funny. It’s like that drunk person everyone knows who thinks they’re good at whispering.

There’s so much joy on the street today. It’s muggy but sunny; perhaps the mood is a result of the unexpected break from the rain. A young couple just sat outside, directly in front of me. Their pictures are probably on Merriam-Webster next to “young love.” It’s to be hoped they leave soon, though. They are staring at each other and awkwardly caressing acceptable-to-touch-in-public body parts. I love young love but I don’t really want to be looking directly at some aspects of it.

Earlier this week, I was talking with someone about Frida Kahlo as we studied one of her many paintings, the particular one of Frida in a vibrant red dress reclining in a verdant tree from the Mexican Museum of Modern Art. He kept saying Spanish and I kept saying, Mexican. Finally, he turns to look at me and says, “I do know the difference.” Clearly, he doesn’t know the difference if he thinks Frida Kahlo was Spanish. Yes, her mother was Spanish but Frida was extremely clear, her entire life, about her commitment to Mexico. She even changed her own birthday to coincide with the Mexican revolution. I’m sorry to have to report that my shovel slipped and knocked him into the six-foot hole I was just randomly digging in the middle of [REDACTED] forest. Hopefully, none of you needed anything from him.  

You’d have to be here to experience the joy I just felt watching someone ride a scooter down the street while wearing a stuffed turkey hat over his helmet. At the exact same time, two young Jewish men are walking by, saying “Shana Tova” to the people they pass, including the young woman wearing a baby on her chest and carrying a cold drink. They’re so busy sharing greetings that they completely miss turkey-scooter. 

A large “off road” pickup truck has just parallel parked in front of the coffee shop. He only backed onto the sidewalk twice. Don’t judge him; trucks are tough to park. I don’t think he’s a contender for this weekend’s parallel parking contest. Yes, the contest is real and the winner gets, among other things, a gold (painted) parking chair. Also on this weekend’s agenda is Johnny Cash Day at the Elk’s Lodge, the same location as the Banjo Club nights. Johnny Cash Day usually sells out pretty quickly; if you don’t have tickets, you probably aren’t getting tickets. 

Ran out of battery power and am now working in the back of the coffee shop, attached to a wall by a cord. I’ve been writing for hours and am taking a break now, by writing something else. Hmm. Perhaps I should take a break by taking a walk? A better idea but one I’m not following up on until I have finished editing Chapter 12 of my manuscript. It’s a…um…it’s an intimate scene, let’s say, which is a bit awkward because my screen is not currently facing a wall. Anyone walking by could potentially see some references to body parts and dangly bits and…well, it’s awkward when I’m plugged in. (That’s what she said.)

A cute guy MY AGE just sat down next to me, making this even weirder. I wouldn’t have thought that was possible but then again, ten years ago, I wouldn’t have thought I’d write what I’m currently writing. I’ve turned a little on my chair to hide my screen. Today-me would like to travel back in time to suggest one of those privacy screens to a-week-ago-me.

Much love.

Weed Pens and Pompadours

Red Cardy For The Win

It’s days after the Charlie Kirk murder and my daughter just went to see President Obama speak. I was nervous about her attending. We assert that we won’t be silenced by rhetoric demanding our silence but it’s another thing entirely to have one’s child in a place where political violence is a possibility, if not a likely event. 

I read an article recently that cautioned against suggesting that one “side” is violent but the other “side” is not. I understand the argument, though the data shows clearly that one “side” IS literally responsible for the vast majority of political violence. To suggest otherwise is a little disingenuous, isn’t it? It’s not that liberals are incapable of violence. Everyone can be pushed beyond rational into irrational behavior. Perhaps liberals are just generally more accepting of difference. 

Anyway, I was walking into Shadyside yesterday when I saw an elderly couple coming toward me. She was petite, with long white hair. He was tall, wearing a ball cap. He said something that made her laugh and then smile at him. She reached up and curled a lock of her hair between her fingers and I saw, just for a moment, the young woman she used to be.

Today, I am at a body shop. My car was sideswiped again, this time taking out only the driver side mirror. The actual mirror wasn’t damaged but the casing was cracked beyond repair. For several weeks now, my car has looked like an orange terminator as his facade was being torn away. 

The car is a manual transmission which, I know, is a rarity these days. When I have to surrender it, I always ask the young people taking the keys if they can drive a stick. I don’t have to ask anyone older than me because they, too, grew up with manual being the standard. Not long ago, I had to back my own car out of a big garage bay because the only worker who could drive a manual left early. When armageddon occurs, I’m golden, except that I won’t be able to get contacts or replacement glasses. That will suck.

Joel, owner of the body shop, just popped his head in to ask me if I can stay a little longer. He waved the new casing at me. It’s the wrong color. They’re going to have to paint it. He asked if I was okay with it being the wrong color. Friends. My car is ORANGE. Pumpkin orange. Not pumpkin spice orange. Not rust orange. Not peach. It’s ORANGE. Do I mind having a gray side mirror? Uh, YEAH. If I wanted a gray car, I’d have gotten a gray car. Honestly, I have moved through the world quietly, with little color in it for too many years. So, I’ll be staying at the body shop a wee bit longer than I’d planned.

Yesterday, I had the fright of my life, thankfully it lasted .02 seconds but I’ll be honest. My heart stuttered. I was walking up the sidewalk to my house, carrying one of our cats in a carrier. My 97 year old next door neighbor was walking down his steps. I may have mentioned that this man is the single nosiest human being to exist in this or the last century. Yes, I know. You think I’m exaggerating. Well, here’s my proof that I’m not: he was so busy rubbernecking what I was carrying that he forgot he was walking down his steps. He stepped forward and landed ON HIS FEET two full steps below where he’d just been standing. He Danny Kaye’d those steps like a boss. I’m kind of proud but also it’s a miracle that he didn’t break his hip. 

A brief public service announcement: someone has just joined me in the waiting room at the body shop. I briefly looked over as he sat down and got an actual eyeful of bare man butt. Do men 1) not care; 2) not notice; 3) not wear underwear? Now I’m afraid to look over there again, though I have a weird compulsion to keep checking whether he’s fixed the issue. But I’m not going to check because I don’t want to see anymore buttcrack.

If you live in the area, you might have heard about the four alarm fire in Squirrel Hill last week. I was with my son and completely unaware that there was a fire. Here’s me, all righteously indignant as that strong burn smell permeates the car, making me cough: “we’re in a drought. No one should be burning leaves right now.” My son looks at me like I’m crazy. “Mom, an apartment building is burning down two streets over.” OH. 

We headed to the waterfront and watched the dark, billowing smoke, the arcing jets of water from the firehouses. The building was a total loss but everyone got out safely. I drove by today, on my way to the body shop. It’s in the process of being demolished because part of the roof collapsed on the day of the fire. The smell of smoke still heavily permeates the air. The front wall is partially gone. The second floor reaches for the ground like Michael Jackson’s anti-gravity lean but with grief instead of beauty. People at the Levin Clubhouse down the street took the residents in that morning, gave them drinks, held them while they cried. I heard that the firefighters went into the engulfed building after pets and important papers, helping, risking their lives for others, as they always seem to.

Two weeks ago, my eldest and I were eating breakfast at Kelly O’s in Pittsburgh’s Strip District. Four firefighters, heavily muscled, their hair cut short, sat at a booth in front of us. The youngest was younger than my thirty year old son. The eldest was probably a few years older than me, grizzled, his bald head shining in the morning sun. We stopped at their table as we were leaving. They looked up from their seats and smiled at us as I thanked them for the work they do and wished them safe passage. We also bought their breakfast, which caused two of the men to blush. I’m rather disappointed that they don’t always eat for free. 

The current leader of the “Free Our Butt Cheeks” (FOBC) movement has addressed his body… no, no, um…has finished his business…hmm…has cracked the…not that…has wiped…. Wow. He’s not here. He’s gone. He sat in the only chair in the shade, which now has bare butt (bear butt?) (bare bear butt?) (bear bare butt?) on it so…I’m just going to roast in the sun. I have more cheeky jokes but(t) I’m going to grin and bare it instead. (No, I’m not)

I’m at the coffee shop now. I’m “supposed” to be waiting for a dishwasher delivery (not my dishwasher) but the wifi there isn’t sterling. Thus, with the hubris of a middle-aged white woman, I’m counting on my ability to arrive before the delivery truck when I get the warning call. Will I make it in time? We’ll see. Given that I am late for everything, even my liver surgery, I wouldn’t bet on me.

An older couple just crossed the street. They’re holding pinkies very casually, their hands swinging gently as they walk. My husband hated holding hands with the fire of a thousand suns. I was slightly taller and he complained that our height difference made hand-holding awkward. But I’ve always wanted to hold hands with my partner. I think I missed out, to be honest, but perhaps that’s just my desire for companionship.

An employee from the bakery across the street just tried to negotiate a pastry swap with the coffee shop, without success. I almost offered to participate but I don’t actually have any pastries so it would really just be me asking the bakery for free treats. That works for me but I don’t think he’d agree.

There’s an elderly lady sitting outside, on the opposite side of the big garage window from me. She has beautiful iron-gray hair and well-manicured nails that she is assiduously filing and has been since I arrived. In my life, I don’t think I’ve spent as much time on my fingers and toes, which may be why I just described her nails as well-manicured. 

Have you ever–even as a child–been hugged when you really didn’t want to be? Perhaps you didn’t know or didn’t like the hugger or maybe you just wanted to maintain your personal space, undisturbed. Once, I worked with a man who hugged and kissed all the women he worked with. He was in a position of power. Our options were limited unless we (by we, I mean women, obviously) were willing to be labeled “difficult to work with” by leadership. In a world where it was incredibly difficult to get ahead, being labeled difficult was tantamount to blacklisting. Thus, we kept silent. 

In my private life, I began addressing this imbalance, particularly with children whose voices are often less heard even than women’s. I was talking with someone today about that. She complained that her child relatives don’t like hugging her. I asked if she asked those children for permission and she told me that they have to hug her. She MAKES them. Hey, guess what?! I may have figured out the problem. Making anyone hug you is a violation of the very boundaries we try to teach children so they don’t have to put up with the creepy hugs (and kisses) we had to endure as children. And even as adults. So, just ask. And gracefully accept “no” if it’s given. You could even offer a high five, a fist bump, hand shake, wave, as options. When we teach children boundaries, those boundaries need to apply equally to us.

The men’s cross country team just ran by. I didn’t gawk at their young, fit, shirtless, tattooed beauty. I’m no creeper ogling young men my children’s age; but all of my young coffee shop neighbors did some very serious ogling. I watched the heads swivel from left to right as the runners passed in front of the window. Hehe 

My computer ran out of juice. I have moved to a squishy chair beside an outlet. There are two people sitting on the sofa next to me, chatting about things that mean nothing to me. Since I’m supposed to be working, I’m trying really hard not to let their conversation distract me. Nonetheless, occasionally, the man laughs aloud and I wish you could hear it. It’s delightful, a deep belly laugh that makes the listener want to share his mirth. 

The work day is NOT over. I have an article to finish and I cannot sleep until it’s done, which is why I’m now finishing this blog…wait. 

Anyway, before heading home, I walked across the street to our favorite pizza place to order take out and then sat on the bench outside to wait (and to continue working on my article). I was there for about 10 minutes when a young man and his date, a young Asian woman (we’ll call her cute shirt because she was wearing a cute shirt), left the pizza place with cups of gelato. They passed me on my bench just as a scream issued from across the street. Naturally, I turned toward the sound and discovered another young Asian woman (we’ll call her red cardy because she was wearing a red cardigan) watching the white dude and cute shirt approach. Red cardy screamed, “WTF? Another Asian girl?” Her use of vocal emphasis was perfection, by the way.

The white man ignored her, walked by with cute shirt. Honestly, a rather bold move, I thought. Red cardy followed them, yelling. Sadly, I could not hear her exact words, though I suspect them of being quite righteous. Certainly they were fueled by rage. He stopped and turned around.

Cute shirt is now the third point of their triangle, looking uncomfortably between the two. She has stopped eating her gelato. As appearances go, she’s well-placed, standing equidistant. Better not to choose sides or make alliances until all the facts are out. The conversation, muted now, continues for several minutes. Cute shirt turns to red cardy who is preparing to walk away. Red cardy says something to cute shirt who nods agreement. Alliances have formed. I suspect that the young man, who appears to have been dating two Asian women, is now dating zero Asian women. 

And now, I promise you, I am returning to my article so my poor editor doesn’t feel compelled to kill me, even though I definitely deserve it. 

Much love.

Red Cardy For The Win

Updated: An Autumn Fall

Hey friends, I deleted a few paragraphs about Charlie Kirk that made me uncomfortable. Period.

As I walked to Shadyside this morning, a large figure approached from the opposite direction. Initially, it appeared to be a bison walking on its hind legs. This seemed unlikely, though I prepared myself to have a conversation with the creature because who would NOT immediately want to greet a bison walking on its hind legs down a city street?! Sadly, it turned out to be a large man carrying a duffle on each massive shoulder. I did not attempt to start a conversation with the large man.

The diner is unexpectedly busy. A construction worker, probably from the project down the street, is gulping down a FULL breakfast. And I do mean full. He’s slender to the point of skinniness, his bald head a little dirty, like his clothes, though his hands are clean. 

An older couple is talking to one of the servers. They don’t notice that they’re standing in the aisle, blocking the way for the other servers, who are patiently–and impatiently–walking around them, hands full of stacked plates. One of the servers grumbles to me about it and then laughs. It’s a small frustration in a world of complex grief.

One of the line cooks is wearing a sun hat today. He is proud of his goofy look and grins at me when I gesture to the hat and give him a thumbs up. We both laugh and return to our tasks. He’s making (pan)cakes. I’m answering email.

Two young women of Asian descent are laughing as they press their cheeks together and take a selfie in front of Sephora. It’s a sunny, fall-warm day, the sky a clear, bright blue. They’re wearing nearly matching outfits, dark jeans and light-colored tops. Both have hoodies or cardies, it’s hard to tell which, slung over their shoulders.

After much energy unnecessarily expended, I have decided to cede “MY” parking place to my grumpy neighbor. She has a driveway but has taken to parking on the street in the spot where I have parked for the past 17 years. My other neighbors are chagrined about it and have counseled me to have a discussion with her about the inconvenience of parking far-ish from my house. Yesterday, I had Costco supplies to bring into the house and parked in that “usual” spot which was available solely because she had not yet arrived home. 

My friends, she blocked her own driveway to park on the street as close to my car as possible. It’s not worth my emotional health to continue this weird contest. I realized yesterday, when she smiled at me like the victor in a sporting contest, that she really cares about it. Refusing to fight with her about it is making me laugh. So, today, I moved the car. I hope she enjoys the spot. lol

A young woman in a bustier the same color as her skin–and thus, at first glance, topless–is sitting on the floor in a room of empty seats, near the sofa where I’ve been for several hours. It’s not the most comfortable sofa. It IS much more comfortable than the floor. The seat beside me is open, recently vacated by a young man who was working on a digital drawing–I tried to ISpy his work but it was difficult to do discreetly. 

She’s now singing to someone on a facetime call. Come to think of it, I’m glad she’s not doing that on the sofa beside me. It’s annoying. Her furry tail and terry cloth American flag short-shorts are fun, though. 

Much love.

Updated: An Autumn Fall